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Metrics

Welcome to the Children’s Brain Tumor Network Metrics Dashboard. In this edition, You can explore specimen and data metrics, and stay informed about the latest CBTN resources.

We’re dedicated to supporting members of the clinical, research, and patient communities. If you have suggestions for content you’d like to see on this dashboard, please reach out to our team and share your ideas.

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504
RESEARCH
PROJECTS
500
TOTAL
INVESTIGATORS
9+
COUNTRIES
REPRESENTED
7,743
TOTAL
ENROLLMENT
78,415
SPECIMEN
ALIQUOTS

RESOURCES AT A GLANCE

OVERALL TOTAL ENROLLED
ALL-TIME ENROLLMENT1
7,743
FY25
109
TOTAL CHILDREN ENROLLED
5,693
FY25
83
TOTAL CBTN MEMBER SITES
TOTAL MOTHERS ENROLLED2
1,196
FY25
16
TOTAL FATHERS ENROLLED2
854
FY25
10
1 Subjects and Parents
2 CBTN consents children and biological relatives for participation. For patients, medical information about their brain tumor is collected, as well as biospecimens. For biological relatives, only saliva is collected.
* Note that CBTN Fiscal Year runs July-June

BIOSPECIMENS

NUMBER OF COLLECTION EVENTS
ALL-TIME TOTAL
9,185
FY24
198
NUMBER OF TOTAL SPECIMEN ALIQUOTS (ONSITE)
ALL-TIME TOTAL
78,415
FY24
607
NUMBER OF TOTAL SPECIMEN ALIQUOTS (SHIPPED)
ALL-TIME TOTAL
20,089
FY24
72
Collection Events: These are the number of collections per day. Each collection can have multiple tubes.
Aliquot: An individual sample tube.

SEQUENCING ELIGIBILITY, IMAGING, CELL LINES

TOTAL ALL TIME CLINICAL EVENTS
(ELIGIBLE FOR WGS/RNA-SEQ)
ALL-TIME TOTAL
408 WGS ELIGIBLE
2,149 SEQUENCED
1,504 RNA SEQ
2,173 SEQUENCED
FLYWHEEL
ALL-TIME TOTAL
26,958 SESSIONS
1,858 SUBJECTS
CELL LINES
ALL-TIME TOTAL
119

SCIENTIFIC PROJECTS

TOTAL ALL-TIME NUMBER OF SCIENTIFIC PROJECTS (SPECIMENS)4
ALL-TIME TOTAL
191 SUBMITTED
155 APPROVED
FY25 TOTAL
25 SUBMITTED
27 APPROVED
TOTAL ALL-TIME NUMBER OF SCIENTIFIC PROJECTS (DATA)4
ALL-TIME TOTAL
313 SUBMITTED
260 APPROVED
FY24
45 SUBMITTED
21 APPROVED
4 Submitted vs approves project number difference may result from researcher-initiated project withdrawals or a pivot to existing available sequencing data. Some requests could have been approved in a different fiscal year.
5 "Processed data" is available anytime without request and has been utilized thousands of times. You can find more information on the data projects here.

POSTMORTEM DATA

POST-MORTEM
SUBJECTS
ALL-TIME TOTAL
461

POST-MORTEM
WGS/RNA SEQ
ALL-TIME TOTAL
WGS: 66 SEQUENCED
RNA SEQ:147 SEQUENCED
POST-MORTEM
ALIQUOTS ON SITE & SHIPPED
ALL-TIME TOTAL
10,594

POST-MORTEM
DIAGNOSIS TYPES
ALL-TIME TOTAL
29

Access CBTN-Powered Cloud Analysis Platforms

KIDS FIRST PORTAL

The Kids First Portal contains data collected from children affected with cancer and structural birth defects.

ACCESS

PEDCBIOPORTAL

PedCBioPortal is an online, cloud-based cancer visualization and analytics application.

ACCESS

CAVATICA

CAVATICA is a storage, sharing, and analysis platform for large volumes of research data.

ACCESS

FLYWHEEL

Flywheel provides users with the ability to view imaging resources for CBTN's consented subjects.

ACCESS

CBTN Events by Diagnosis

CBTN Demographics

PARTICIPANTS BY GENDER
PARTICIPANTS BY RACE
PARTICIPANTS BY ETHNICITY