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Metrics

Welcome to the Children’s Brain Tumor Network Metrics Dashboard. In this edition, You can explore specimen and data metrics, and stay informed about the latest CBTN resources.

We’re dedicated to supporting members of the clinical, research, and patient communities. If you have suggestions for content you’d like to see on this dashboard, please reach out to our team and share your ideas.

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23
RESEARCH
PROJECTS
150+
TOTAL
INVESTIGATORS
9+
COUNTRIES
REPRESENTED
27
TOTAL
ENROLLMENT
0
SPECIMEN
ALIQUOTS

RESOURCES AT A GLANCE

OVERALL TOTAL ENROLLED
ALL-TIME ENROLLMENT1
27
FY24
25
TOTAL CHILDREN ENROLLED
260
FY24
504
TOTAL CBTN MEMBER SITES
TOTAL MOTHERS ENROLLED2
313
FY24
21
TOTAL FATHERS ENROLLED2
45
FY24
155
1 Subjects and Parents
2 CBTN consents children and biological relatives for participation. For patients, medical information about their brain tumor is collected, as well as biospecimens. For biological relatives, only saliva is collected.
* Note that CBTN Fiscal Year runs July-June

BIOSPECIMENS

NUMBER OF COLLECTION EVENTS
ALL-TIME TOTAL
0
FY24
1
NUMBER OF TOTAL SPECIMEN ALIQUOTS (ONSITE)
ALL-TIME TOTAL
48
FY24
51
NUMBER OF TOTAL SPECIMEN ALIQUOTS (SHIPPED)
ALL-TIME TOTAL
0
FY24
0
Collection Events: These are the number of collections per day. Each collection can have multiple tubes.
Aliquot: An individual sample tube.

SEQUENCING ELIGIBILITY, IMAGING, CELL LINES

TOTAL ALL TIME CLINICAL EVENTS
(ELIGIBLE FOR WGS/RNA-SEQ)
ALL-TIME TOTAL
15 WGS ELIGIBLE
0 SEQUENCED
9 RNA SEQ
0 SEQUENCED
FLYWHEEL
ALL-TIME TOTAL
50 SESSIONS
27 SUBJECTS
CELL LINES
ALL-TIME TOTAL
0

SCIENTIFIC PROJECTS

TOTAL ALL-TIME NUMBER OF SCIENTIFIC PROJECTS (SPECIMENS)4
ALL-TIME TOTAL
121 SUBMITTED
15 APPROVED
FY24 TOTAL
431 SUBMITTED
57 APPROVED
TOTAL ALL-TIME NUMBER OF SCIENTIFIC PROJECTS (DATA)4
ALL-TIME TOTAL
19 SUBMITTED
23 APPROVED
FY24
79 SUBMITTED
1,016 APPROVED
4 Submitted vs approves project number difference may result from researcher-initiated project withdrawals or a pivot to existing available sequencing data. Some requests could have been approved in a different fiscal year.
5 "Processed data" is available anytime without request and has been utilized thousands of times. You can find more information on the data projects here.

POSTMORTEM DATA

POST-MORTEM
SUBJECTS
ALL-TIME TOTAL
78,415

POST-MORTEM
WGS/RNA SEQ
ALL-TIME TOTAL
WGS: 607 SEQUENCED
RNA SEQ:72 SEQUENCED
POST-MORTEM
ALIQUOTS ON SITE & SHIPPED
ALL-TIME TOTAL
198

POST-MORTEM
DIAGNOSIS TYPES
ALL-TIME TOTAL
9,185

Access CBTN-Powered Cloud Analysis Platforms

KIDS FIRST PORTAL

The Kids First Portal contains data collected from children affected with cancer and structural birth defects.

ACCESS

PEDCBIOPORTAL

PedCBioPortal is an online, cloud-based cancer visualization and analytics application.

ACCESS

CAVATICA

CAVATICA is a storage, sharing, and analysis platform for large volumes of research data.

ACCESS

FLYWHEEL

Flywheel provides users with the ability to view imaging resources for CBTN's consented subjects.

ACCESS

CBTN Events by Diagnosis

CBTN Demographics

PARTICIPANTS BY GENDER
PARTICIPANTS BY RACE
PARTICIPANTS BY ETHNICITY